Fibromyalgia and Me

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It took two years and a whole load of anxiety, for the Doctors to finally agree that I was suffering from CFS (chronic fatigue syndrome) and another couple more years to free myself from this extremely debilitating condition

The reason why it took so long to diagnose the illness in the first place was because so little is known about the disorder and what causes it. Even now there are skeptics that still argue that CFS is only in the mind!

In my case it was very real, only I didn’t know that I was suffering from CFS at the time. It began slowly, as persistent flu-like feeling, and even after a nights rest, would wake to a feeling of complete exhaustion. Finally headaches that got progressively worse over time, and a general feeling lethargy.

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HOW do you go from a high-flyer to a bed-ridden zombie who finds even speech a soul-destroying struggle?

To find out, you need look no further than Joe Green, a once hard-working financial director who reached the pinnacle of his profession only to plummet to unimaginable depths.

Joe had been a divisional director and experienced independent financial adviser employed by the Clarke Roxburgh broking group in Malvern, where he worked on behalf of 1,500 clients for 30 years.

It was during this time that Joe, of Colwall, near Malvern, was struck by a deeply misunderstood condition that turned his life upside-down.

He soon found it difficult to get out of bed, let alone go to work, and the harder he fought against it, the weaker and more helpless he became.

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I seem to be in a bit of a slump lately. It began while I was on vacation, when the boys and I all took turns for a couple of days with some sort of virus that caused nausea and (for me) achy knees. After a couple days of rest at my in-law’s house in Oklahoma, I felt better again and was quite active and well for the rest of the trip.

Since returning home, though, I’ve continued to have lingering symptoms on and off, mainly very painful, achy knees and lower legs. Yesterday, I even had a mild sore throat.

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It can always get worse. I got my letter of denial from SSDI today. Even though I know they deny 80% of people who apply for the first time, I was still shocked and panicked. It was 2 page letter that ended with “we have concluded that your condition should not limit your ability to work.”

Huh? That’s one of the craziest things I’ve heard.

The next step is to get an attorney and file an appeal. I have 60 days in which to do so. It’s overwhelming though. I spent some time researching attorneys. The crazy thing about this whole maddening process is that it take energy and a good mind to do this. I have neither right now.

What I’d really like to know is can I start again with this life?

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There is a lot of debate as to whether there is such a thing as “secondary” fibromyalgia due to some sort of trauma. Often, the trauma is the result of a fall, or a car accident. Such “post-traumatic” fibromyalgia patients are more severely affected, with more pain, and are therefore more difficult to treat.

Fibromyalgia may take many weeks to fully develop after a trauma. One theory holds that pain spreads from one region (for example, the shoulder after a fall) to the rest of the body. In fact, this post-traumatic fibromyalgia phenomenon can be seen as starting as a myofascial pain problem which over weeks to months spreads throughout the body, resulting in the total body pain seen in fibromyalgia.

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There is no cure for fibromyalgia at this stage however, that doesn’t mean you cannot keep it under control and enjoy a good quality of life.

There are ever increasing fibromyalgia treatment methods emerging on a consistent basis while approved medications, although not in abundance will likely emerge over the next few years in greater numbers.

However, this article is not about taking medications although they can become part of a fibromyalgia treatment regime but it’s more about using non medication techniques.

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Fibromyalgia is still a mystery. Experts still don’t know why it happens, how to cure it, or if there is a cure for it. It seems to affect women more than men, and they don’t know why this is so. They often can’t give proper diagnoses, because they often don’t know that you have it.

So what is known about fibromyalgia? We know it’s not arthritis. Arthritis affects the skeletal system, and fibromyalgia involves your muscular system. We know it’s a chronic condition that lasts a long time and can possibly afflict you for your entire life.

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In a nutshell, fibromyalgia means that a person with the disease will experience pain in different parts of the body which can last from a few months to many years. Most of the pain that is felt is a result of stiff muscles and even stiffness in the bones.

Because fibromyalgia pain is so severe, it is very necessary that a patient gets immediate fibromyalgia treatment. However, diagnosing the problem is quite difficult and so it is even more important that the patient shows their condition to a doctor as soon as he or she notices symptoms, so that proper fibromyalgia treatment can begin as soon as possible.

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We have now reached a level of obesity in the US, South America, Canada, and throughout Europe which is unprecedented in recorded history.

It is also accepted that the lifestyles we lead are often very high stress.

It is no coincidence that these new peaks of obesity and stress correlate directly with an increase in the occurrence of “modern” or “new” diseases of Western society, including heart disease, the cancers, and others including the rheumatic and fatigue spectrum, specifically in our case Fibromyalgia and CFS.

At least we have moved past the era when debate was so Neolithic as to suggest that these conditions don’t really exist or are a subdivision of psychology and now we can concentrate on the science and biology of these diseases and the reality of life and recovery for Fibromyalgia and CFS patients.

Carrying extra weight will exacerbate small anomalies in musculoskeletal balance.

These anomalies in conjunction with a certain genetic predisposition appear to underlie the onset of Fibromyalgia and Chronic Fatigue Syndrome in certain individuals, while other individuals who suffer the same initial “trigger” infection, trauma or exposure recover relatively unscathed.

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Hello Readers - I was using the new Cuil search engine and I found this article. It is sad that Reliv Distributors believe / think that they know more than doctors. While modern medicines do damage, this does not give a Reliv Distributor the right to contradict. I wish someone would sue Reliv for the damage it has done to people.

Fibromyalgia, Hormonal and Sleep Problems, and Soy

Posted on 03:11PM (EDT) on 2007-06-28

I have had FMS for 20+ years. I have severely disordered sleep, as well as hormonal imbalance, hypothyroidism, hypoglycemia, pain everywhere, and low energy. I was being treated by a very knowlegeable fibromyalgia expert for 4 years. However, after about 1 year, I had to have a transabdominal hysterectomy and bilateral salpingo-oophorectomy. After that my health began to decline again.

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